For Immediate Release
For Further Information
Jim Beriault, 503-740-4869
Beriault Marketing/Molly’s Fund
Noted Lupus Doctor travels to Portland to share his most recent findings and help lupus patients live better lives
Molly’s Fund symposium is May 10th
Portland, OR – One of the top doctors on the front lines of fighting lupus will be making a rare appearance in Portland on May 10th (National Lupus Day). Dr. Donald Thomas Jr. comes to Portland to help arm those with lupus fight a better fight, and learn to deal with the disease with, what he calls his list of lupus of triggers. Knowing better the triggers of a flare (as it’s called with patients); can help mitigate future pain, complications and potential ER visits. Dr. Thomas is part of the Lupus and Autoimmune Condition Patient Forum – presented by Molly’s Fund Fighting Lupus and being held at OMSI (Oregon Museum of Science & Industry), from 2pm to 5pm this May 10th. Visit MollysFund.org for more information. Additional speakers include Executive Director of One and Four Chronic Health – BJ Cavnor, Molly’s Fund Board Member – Anita Noble, and Certified Health Coach and Co-Leader of the Fibromyalgia-ME/CFS Support Center – Tami Stackelhouse.
“Lupus is a complex medical condition requiring more than just taking medications in order to do well. I find that those people who educate themselves as much as they can about lupus do the best in the long run,” said Donald E. Thomas, Jr., MD, FACP, FACR
According to Dr. Thomas, doing well with lupus not only requires being compliant with taking the medications, but also avoiding numerous things that can trigger lupus to be more active, and learning to do certain activities in order to decrease the complications of lupus. “Our knowledge about the best ways to control lupus are evolving constantly and are usually too much to be able to teach a patient in the short amounts of time during visits in the doctor’s office. I have come up with a list of important “do’s” and “don’ts” that everyone who has lupus should do.”
The list will be available at the symposium this May 10th at OMSI. He gives the list to each of his patients who have lupus. “Since we as medical professionals often don’t have time to go over each of these with our patients, I call them the “Lupus Secrets”. This does not at all mean that I want them to be a secret; it refers to the fact that many, if not most, people are surprised about not hearing about some or most of these from their own physicians.”
During Dr. Thomas’ 45 minute talk at OMSI, he will discuss some of the more important triggers as well as share them in a handout. He strongly believes that If everyone who has SLE were to do the things on his list he believes that patients, who have SLE, would be able to live with and fight their disorder much more effectively.
The bottom line of Dr. Thomas’ talk is to provide powerful information to patients, to learn to control their disease rather than letting it control them. The Lupus and Autoimmune Condition Patient Forum is an educational forum and place for patients, caregivers and advocates for anyone living with lupus, an autoimmune disease or chronic condition to come together as a community for increase awareness and educate about the disease.
The symposium is being presented by Molly’s Fund Fighting Lupus, the Northwest’s leading lupus awareness and education organization. Molly’s Fund is dedicated to providing the best and most up-to-date information about the disease and creating an online lupus community that provides support, and works to educate the medical community and local governments about lupus and collaborate with researchers for a cure.
The Lupus and Autoimmune Condition Patient Forum has also invited BJ Cavnor (Executive Director of One in Four Chronic Health), Anita Noble (Molly’s Fund Fighting Lupus Board Member and lupus patient), and Tami Stackelhouse (Certified Health Coach and Co-Leader of the Fibromyalgia-ME/CFS Support Center, Inc.) – to discuss the patient perspective on conditions including but not limited to lupus, rheumatoid arthritis, scleroderma, multiple sclerosis, and fibromyalgia.
They will seek to unravel a few of the most critical questions that people struggling with chronic and autoimmune conditions face:
- Affordable care: How the Affordable Care Act and new insurance laws help people living with autoimmune conditions.
- How to be your own best advocate: self-care for people living with autoimmune conditions.
- Accessing care: advice to help access medications and treatment people living with autoimmune conditions.
About Dr. Thomas: Dr. Donald Thomas is a rheumatologist with a special interest in lupus. He is in private practice with Arthritis and Pain Associates in Greenbelt and Clinton, MD. He has been an active member of the Medical Scientific Advisory Council for the DC/MD/VA chapter (and the previous Greater Washington chapter) of the Lupus Foundation of America since 1999 and currently serves as its Chair. In addition to his love of taking care of patients, he also loves teaching other physicians about rheumatology issues as an Assistant Professor of Medicine at the Uniformed Services University of the Health Sciences in Bethesda, MD. He is a strong advocate for people who have lupus and is the author of the upcoming book from Johns Hopkins University Press entitled “The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families.”
About Lupus: Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). When a person has lupus, something goes wrong with the immune system, and it cannot tell the difference between foreign invaders and your body’s healthy tissues and creates auto-antibodies that attack and destroy healthy tissue. The result is intense inflammation, pain, and damage in various parts of the body. There is no cure, and thousands of Oregonians suffer from this illness, and millions do worldwide.
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