Molly's Fund Fighting Lupus Press Release

3rd Annual Lupus Awareness Month in the Northwest

ADVISORY

May 2013

Molly’s Fund Fighting Lupus Celebrates 3rd Annual Lupus Awareness Month in the Northwest

The organization is launching a comprehensive awareness campaign, all-new web site and lupus walk during May

Portland, OR –The Oregon State Legislature unanimously approved the designation of May as Lupus Awareness Month 3 years ago – finally giving a voice to those with the disease.  Molly’s Fund Fighting Lupus, based in Portland, Oregon has been on the frontlines of bringing the devastating disease of lupus into the spotlight. Now the organization is poised to launch a comprehensive new website, a three-state awareness campaign in the Northwest, creating compelling and informative information in print, radio and television and continuing the fight for the rights of those with lupus in Oregon, Washington and Idaho for better healthcare. 

NOTE: In Oregon and beyond – lupus is more common than muscular dystrophy, multiple sclerosis, leukemia and cystic fibrosis combined – yet few know this fact. 

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). When a person has lupus, something goes wrong with the immune system, and it cannot tell the difference between foreign invaders and your body’s healthy tissues and creates auto-antibodies that attack and destroy healthy tissue. The result is intense inflammation, pain, and damage in various parts of the body.  There is no cure, and thousands in the Northwest suffer from this illness, and millions do world wide.  

BACKGROUND: In 2011 Senator Diane Rosenbaum and Representative Carolyn Tomei, co-chairs of the Oregon Women’s Health and Wellness Alliance (OWHWA), with Molly’s Fund Fighting Lupus and others dedicated to promoting women’s health, pushed Oregon Bill 348 to passing and made this landmark dedication and recognition a reality.  This continued dedication is important to those thousands of Oregonians who have suffered in relative silence with lupus.

To learn more about May as Lupus Awareness Month in Oregon visit MollysFund.org and Facebook.com/MollysFund

Molly’s Fund Fighting Lupus offers tremendous resources those afflicted with lupus.  Their all-new web site, www.MollysFund.org, is an amazing online forum and community for those with lupus.  The burgeoning online community that exists within their web site and Facebook community serves those around the Northwest and beyond. 

Molly’s Fund Fighting Lupus is a recognized leader in providing patient-first support to those affected by this disease in the Northwest.  Through support groups, education, advocacy and awareness building, Molly’s Fund is Oregon’s leading lupus organization.  “Our new web site is exactly what the lupus community needs… good information, solid resources, support systems, and a place to call home.  I’m proud of our work, and excited to reach out to those with lupus like never before,” said Molly McCabe, co-founder of Molly’s Fu

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Lupus Awareness Month Activities:

Butterflies in the Park – A Walk for Lupus Awareness is back and being held at Oaks Park!  Last year, more than 300 people affected by lupus joined Molly’s Fund for a morning of walking, talking, education and advocacy.  This year, the organization expects close to 600 people to participate.  Joining the walk is easy – visit www.MollysFund.org or register direct at: www.mollysfundevents.org/butterfliesinthepark 

“Our first ever walk was an enormous success,” said Molly McCabe, co-founder of Molly’s Fund.  “We had no idea if anyone would attend, and we were delighted to see so many concerned about lupus awareness, education and the need for a cure.  The walk was so inspirational, other lupus walks in our name are starting to sprout up around the country.”

DATE:            May 18th

LOCATION:   Oaks Park (7805 SE Oaks Park Way Portland, OR 97202)

TIME:              9am to Noon

REGISTER:   www.mollysfundevents.org/butterfliesinthepark 

The second Dine & Donate for Lupus is happening at various restaurants around the Portland area.  Here’s a great way to raise money for Molly’s Fund mission of awareness and advocacy.  A percentage of your meal will go direct to Molly’s Fund.

DATE:            May 1 – 31

LOCATION:   All around Portland (visit the link for list of restaurants)

VISIT:             http://www.mollysfund.org/get-involved/events/dine-and-donate-may-2013-portland-area

 

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Also being announced: Molly’s Fund is aligning with the Northwest Chronic Care Collaborative.  There are currently an estimated 3.5 million people living with chronic medical conditions in Oregon and Washington.  The needs of people with chronic health conditions are unique, and that patients and their care teams are the best experts in their own care.  This is why we are proud to announce the creation of a Northwest Chronic Care Collaborative as a partnership between Molly’s Fund and the Northwest Patient Education Network.  This new Coalition will work as a partner with the organizations that represent patients sharing resources, providing assistance with advocacy and education. This first program will launch early this fall, will be a series of community meetings throughout Oregon and Washington designed to provide the specific information people living with chronic health conditions have as they enroll in insurance plans.

Some Hard Facts:

Visit www.MollysFund.org for more information.       

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Article by : Karrie Sundbom

Karrie is the Digital Marketing Manager at Molly's Fund and responsible for innovating content for all of Molly's Funds online communications, creating memes and graphics, writing the MFFL Newsletter and main lupus blogs, as well as developing and managing the content for all of our social media platforms. Connect with Karrie on LinkedIn and Google+ .
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