Steroids Lupus

Steroid Stand-Off

POSTED BY MOLLY MCCABE /

It’s been a rough couple of months.  I have been tapering off Prednisone for, well, it feels like forever, but it’s only been six months.  I am finally getting to the end of the road, but the lower my dosage gets, the harder life is.  I’m tired all the time, my pain level is super high and my emotions are all over the place.  Oh, the joys of taking lupus meds!

Every time that I would lower my dosage, I would get an infection
and raise my amount of prednisone so I would feel better.  I’ve come to the conclusion that this is faulty thinking and was never going to get me anywhere.  I had to dig in and stick with the lowering no matter how bad I felt and boy did I feel bad sometimes.  It isn’t easy and I don’t know if I’m doing things the right way, but I’m doing it the only way I know how.

In the middle of all this tapering, I also was informed that my teeth are a disaster area because of this darn prednisone thing.  I have, wait for it, NINE cavities, TWO infected teeth, and ONE chipped tooth needing a crown.  You would think that I never brush my teeth, right? Nope.  I brush twice a day, floss on a regular basis, and even use flouride mouthwash once in a while.  Wouldn’t you think that is enough?  Apparently not, because $6,000 in dental work later, I still don’t know what to do about stopping this from happening again.  Don’t you just love lupus??

I may sound really down right now, but honestly, I’m just plugging along each day, fighting the fatigue and hoping that the next day will be better.  Before I sign off, I want to share this amazing video that was created by a dear friend of mine.  Hope you all enjoy!!!

 

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Article by : Molly McCabe

Molly McCabe co-founded Molly’s Fund Fighting Lupus after being diagnosed with lupus. She, her mother Debbie, and a group of committed volunteers are determined to improve the lives of people with lupus through increased awareness, earlier diagnosis, and peer support. Molly spends much of her time communicating with lupus patients to determine their most pressing needs…the needs that Molly’s Fund Fighting Lupus aims to fulfill.
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