Lupus and Children


I was diagnosed with Lupus in early 2005 and went through a lot of trouble getting to that diagnosis. I had a great doctor who finally sat down and sent me to see every specialist the hospital had. I saw 2 ENT’s, a cardiologist, 2 infectious disease specialists (just because the test said I didn’t have mono, they still want to run it again, ugh!), an allergist, an ophthalmologist, an endocrinologist, naturopath and then finally a rheumatologist who knew in 2 minutes that I had fibromyalgia and a week later knew for certain that I had lupus. It was exhausting just getting to the diagnosis. What I didn’t realize is that the diagnosis was only the beginning.

“Life is beautiful music; some high notes, some low notes, but beautiful just the same.”

I know that when I learned I had Lupus, my first reaction was, “Thank God I finally know what is making me sick”. My second reaction was, “What’s Lupus?” I would imagine that’s what a lot of us feel like. I was so confused about what the diagnosis meant and what I could do about it. My doctor didn’t really explain what Lupus was, she just wrote out a prescription for Plaquenil, told me it wouldn’t work for six months and to come back and see her next month. My mind started racing a mile a minute to try and recall anything I’d ever heard about Lupus. Unfortunately, the only thing I could remember was a movie from back in the eighties with Christine Lahti and Matthew Modine, in which the main character died of Lupus at the end. Of course, I know now that the odds of that happening are very small, but for a few weeks, I was certainly panicked.

I’d be lying if I said that it does n’t still hit me every once in a while that my life has made a big change, but I don’t think it has to be for the worse. Things are different, but they are also better at the same time. I have a fabulous family that is so good to me. I have an incredibly supportive group of friends who not only help me out when I need it, but are also good at helping me stay healthy and not push myself too far. I hope that you all have the same and are enjoying a pain free day! Take care!!

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Article by : Molly McCabe

Molly McCabe co-founded Molly’s Fund Fighting Lupus after being diagnosed with lupus. She, her mother Debbie, and a group of committed volunteers are determined to improve the lives of people with lupus through increased awareness, earlier diagnosis, and peer support. Molly spends much of her time communicating with lupus patients to determine their most pressing needs…the needs that Molly’s Fund Fighting Lupus aims to fulfill.
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