Clinical Trials, Coping With Lupus, Living with Lupus, Lupus Awareness

Communicating With Your Family About Lupus Research Study

Molly’s Fund Fighting Lupus is proud to partner with the University of Nebraska-Lincoln Department of Communication Studies on a research project about health communication processes. Read more below, and learn how to participate in the study with information from the research author, Kathy Castle.  


The Research

My name is Kathy Castle and I am a doctoral student in the Department of Communication Studies at the University of Nebraska-Lincoln. My research centers on health communication processes, and I am conducting research that I hope will improve our understanding of communication in family contexts for women with SLE. As someone with SLE, I am interested in conducting research that is aimed at better understanding the way that families communicate about SLE.  


To Participate

Participants in the states of Nebraska and Alabama must be at least 19 years old or older to participate, participants in the state of Mississippi must be at least 21 years old to participate, and participants in all other states must be at least 18 years old to participate. If you meet these requirements, have been diagnosed by a medical physician with SLE lupus at least one year ago, and have 15-30 minutes to complete an online survey, you can be a part of this exciting research! To access the survey and participate in the research, simply click here. I appreciate your time. When the study is concluded, I would be happy to share the results with you. Thank you for considering being a part of this important research!

-Kathy Castle  


Contact Info

Katherine M. Castle                 Dr. Jody Koenig Kellas

Phone: (402) 472-5658                Phone: (402) 472-2079

Email: [email protected]             Email: [email protected]  


Article by : Kelli Roseta

Kelli Roseta is the Client Services Coordinator for Molly’s Fund Fighting Lupus and facilitates the patient and caregiver support groups. She is also a 26-year lupus survivor. Connect with Kelli at [email protected].