Lupus Information

 

Dr.-Thomas-25-x377-72dpi-webWe were so incredibly impressed by the “Lupus Secrets” that Dr. Donald Thomas shared with Molly’s Fund Fighting Lupus, our patients and caregivers at our Lupus and Autoimmune Conditions Patient Forum that we just knew we needed to share this important lupus information with all of the populations that we serve. This is one blog that you will absolutely not want to miss!

Who is Dr. Thomas?

Dr. Donald Thomas is a board-certified Rheumatologist at the Arthritis and Pain Associates of P.G. County in Maryland with a particular interest in Systemic Lupus Erythematosus (SLE) and treats all forms of arthritis, systemic autoimmune diseases and metabolic bone diseases.  He is also the author of The Lupus Encyclopedia.

We are also pleased to be sharing the video of his ”Lupus Secrets” webinar with Molly’s Fund, videos from his engaging and enthusiastic live presentation for the Molly’s Fund Fighting Lupus Patient Forum, as well as the full listing of the 28 “Lupus Secrets”.

Please watch them to learn at least a few things you may not have already known! All of us at Molly’s Fund learned several new tips, including new medication indication information for Plaquenil. Be your own best advocate and stay educated to live your best life with lupus.


 

What did others think of the webinar and is it worth watching?

Below are just a few comments from people who attended the webinar. Please watch it and let us know your thoughts in the comments section at the bottom of this blog:


“Thank you so much for the very informational webinar! I immediately got on Amazon and pre-ordered the book The Lupus Encyclopedia by Dr. Donald E. Thomas Jr.Lupus Information I can’t wait to get my hands on it. I was in awe as he explained every topic. 

I was diagnosed with Fibro almost 20 years ago and have struggled with pain and complications. Later I was diagnosed with neuropathy unrelated to diabetes and then eventually diabetes years later. My Mentally Challenged 31 year old daughter was recently diagnosed with SLE; three weeks later my 34 year old son was diagnosed with Discoid Lupus. Your web site has been a blessing to me. I thought I would just lose my mind until I found your website. Thank you for being there!” ~Heidi


 “Thank you very much for the very informative webinar. I feel empowered.”  ~Monica


 “I consider myself very educated about lupus and related health issues. I read journals and access both patient- and doctor-oriented materials, stopping frequently to look up terms, etc. And Dr. Petri was my rheumy for a while, and she throws a lot of info at her patients. Anyway, sometimes, lupus info. sessions are so basic & there’s nothing new for me. BUT I learned several new things during the webinar. Some were from very recent research and some were just explained super well. And Dr. T. answered a couple of questions of mine very thoroughly and accessibly. He is an excellent resource for lupus patients and their caregivers.”  ~Beth L


“This was such a helpful webinar. I am so grateful to Dr. Thomas and Molly’s Fund. I feel so much more in control of my disease and my conversations with my doctor with the Lupus Secrets. Thank you! ~Anonymous


I appreciated Dr. Thomas’s talk, it was very informative.  I really enjoyed his style too, he was very clear and approachable. ~Anonymous


I learned some new information about otc fish oil capsules and the need for additional protection from uv light even indoors.” ~Michele


 Dr Thomas is an excellent educator and has a gift for presenting relevant information in an easy to understand manner. We are lucky that he is so generous to share all this information through social media, I have already learned so very much from him and am looking forward to his book. ~Rosemary


Here is the video from the “Lupus Secrets” webinar:


“Lupus Secrets” video presentation with valuable lupus information

To watch his complete “Lupus Secrets” presentation please see them broken down into three segments below. Following the videos you will find all 28 “Secrets” listed out in detail.



If you enjoyed this and found it useful, please comment below and share with friends and family.


The 28 Lupus “Secrets” by Dr. Donald Thomas

The condensed version of the 28 secrets is below, but you can find the accompanying hand out, with even more details and lupus information, by clicking here.

Secret 1

Avoid sulfa antibiotics (add to your allergy list):
Trimethaprim-sulfamethosaxole (Bactrim, Septra)

Secret 2:

Keep a personal record of:
Lab results, biopsy results, x-rays, doctor notes. Especially keep those that established your diagnosis of lupus.

Secret 3

Take aspirin (81 mg a day) if you are at an increased risk for heart attacks, strokes, blood clots
High blood pressure, high cholesterol, diabetes, have a strong family history for heart attacks, or if you are positive for antiphospholipid antibodies.

Secret 4

Do you ever feel down in the dumps, have problems with memory, concentration, have severe fatigue, trouble sleeping, loss of interest in enjoyable activities, ache all over? If so, consider possibilities of: Fibromyalgia, Depression, Anxiety Disorder.

Secret 5

Do you have dryness? Dry eyes, dry mouth; itchy, dry skin in Winter; Dry vaginal area
30% of lupus patients have and overlapping disease called Sjögren’s Syndrome: especially possible if +SSA/SSB antibodies

Secret 6

Keep blood pressure below 140/90
Or below 130/80 if you have: Protein in your urine, had a heart attack, had a stroke

Secret 7

High HDL ≠ Good cholesterol in lupus

Secret 8

Do not smoke cigarettes! It keeps Plaquenil from working, increases lupus disease activity (Tobacco smoke contains hydrazine that makes lupus more active), causes heart attacks and strokes, increases lung cancer, causes broken bones (osteoporosis) Call 1-800-QUIT-NOW or visit www.smokefree.gov.

Secret 9

Exercise regularly:

Secret 10

If you get a fever:

Secret 11:

Get the flu shot every Fall:

Secret 12

Get vaccines against pneumonia if you are on immunosuppressants:

Some Immunosuppressant Medications:
Prednisone > 7 mg a day, Methotrexate, Arava (leflunomide), Imuran (azathioprine), CellCept (mycophenolate), Myfortic (mycophenolate), Cytoxan (cyclophosphamide) , Benlysta (belimumab), Rituxan (rituximab), Humira, Enbrel, Remicade, Orencia, Actemra

Secret 13

Get the Gardasil vaccine (protection from human papilloma virus):

Secret 14

Keep up on cancer screening tests:

Secret 15

Take a vitamin D supplement if your level is low:

Goal level of vitamin D?: At least 30 if on steroids, allthough Johns Hopkins study suggests around 40.

Secret 16

If you take steroids (prednisone, methylprednisolone) ask your doctor if you should be on a medicine to prevent osteoporosis.

Secret 17

If you take steroids regularly, wear a medical alert bracelet.

Secret 18

Take medications regularly as prescribed:

Secret 19

Carry an up to date medication list at all times:

Show it to anyone who asks you what medicines you are taking; Update it every time a change is made; discard old medicines.

Secret 20

All patients should be on an anti-malarial: Plaquenil (hydroxychloroquine), Chloroquine (Aralen), Quinacrine

Benefits of Antimalarial Medicines:
Increase life span, Decrease internal organ involvement, decrease risk of worsening of lupus, decreases doses needed of steroids,better control of severe disease when used with stronger medicines, decreases blood clots, decreases neonatal lupus births, improves chances of a successful pregnancy, decreases risk of getting diabetes

Secret 21

Preventing eye side effects from Plaquenil (American Academy of Ophthalmology):

Recommended dosing for women

Use an Amsler grid monthly to check your vision:  See eye doctor yearly after 5 years on Plaquenil

Ask eye doctor to do:

Secret 22

Use sunscreen:

Secret 23

Avoid alfalfa and mung bean sprouts:  They contain L-canavanine (Increases immune system and lupus activity)

Secret 24

Eat a diet rich in Omega-3 fatty acids:

Secret 25

Don’t take the herb Echinacea: It is sold to reduce colds and “boost immune system” and causes lupus to flare

Secret 26

Consider taking DHEA:

Secret 27

Reduce stress:

Secret 28

Learn as much as you can about lupus:

Lupus Information“The best to you, your life, and your health!” ~Dr. Thomas

We would like to thank Dr. Thomas for sharing his insights, lupus information, and time with us here at Molly’s Fund! We consider him to be a fantastic ally and resource when it comes to educating the public and medical community aboug lupus as well as spreading lupus awareness. We look forward to partnering with him on future projects.

Source: Donald E. Thomas, Jr., MD, Arthritis and Pain Associates of PG Countywww.facebook.com/LupusEncyclopediawww.twitter.com @lupuscyclopedia

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Article by : Karrie Sundbom

Karrie is the Digital Marketing Manager at Molly's Fund and responsible for innovating content for all of Molly's Funds online communications, creating memes and graphics, writing the MFFL Newsletter and main lupus blogs, as well as developing and managing the content for all of our social media platforms. Connect with Karrie on LinkedIn and Google+ .
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